Feeling Bald As A Nw1, Aggressive Diffuse

bluecyclone

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I’m still on the border of people noticing. I’ve been very fortunate. My AA started just under two years ago. At first it was a huge Telogen Effluvium that gutted a great deal of density. What was left was still thick healthy hair. I was again lucky to have a lot to loose.

I listened to different doctors tell me it was just Telogen Effluvium and to wait a year. After a year they said maybe try to Rogaine. Shed like a horror movie for four months. I saw my scalp from the front and couldn’t comb my hair anymore. For two years I’ve lost at least 100 hairs a day.

I kept on for almost a year reading, trying to learn, hitting labs etc. but when I touch my head or take a shower the loss of density feels like I’m already bald. It is not BDD. I’m open to any options, but trying to stay of the hormone stuff as long as possible. I’m trying RU, minoxidil but in the two year there has been zero progress. Just wanted to share. If nothing else to the guys out there receeding but keeping density. It a different experience when the loss is everywhere.
 

buckthorn

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yup, diffused thin in the NW7... now half down the BACK and SIDES of my head. it's a complete nightmare.
 

bluecyclone

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Yes after 39 years zero Hairloss. I was started on thyroid meds, 8 months later I started thinning and it has been a steady decline since. Recently restarted the thyroid meds and another shed started. Can’t tell if the borderline hypo is worse than the loss from the meds.
 

DoctorHouse

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Yes after 39 years zero Hairloss. I was started on thyroid meds, 8 months later I started thinning and it has been a steady decline since. Recently restarted the thyroid meds and another shed started. Can’t tell if the borderline hypo is worse than the loss from the meds.
@bluecyclone, you will be fine. My story is your story and I am still doing fine. I wish every day I can have my hair I had at 39. But I am still grateful what I have now. Let it go that you will still be able keep your 39 year old hair when you are 50. Age is not too forgiving.
 

bluecyclone

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Thanks. The thinning is akin he sides as well. Just no miniaturized hairs there.
 

bluecyclone

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@DoctorHouse it has just gotten exponentially worse. I’ve been in the RU worried about Propecia as my DHT was already really low. Losing any and all hope.

There are bald spots all over and almost no density. Forelock is down to a few hairs and I’m shedding mostly normal health hair. What’s left is a thin stringing mess. In November things felt like they were improving.
 

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DoctorHouse

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@DoctorHouse it has just gotten exponentially worse. I’ve been in the RU worried about Propecia as my DHT was already really low. Losing any and all hope.

There are bald spots all over and almost no density. Forelock is down to a few hairs and I’m shedding mostly normal health hair. What’s left is a thin stringing mess. In November things felt like they were improving.
You still got good density for your age. Your hair is very long so you are going to see scalp with a part. You don't understand that your hair loss is still considered minor. You have way better density than I did at 39 even in that photo. And you don't have gray hair. Very jealous.
 

rclark

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@DoctorHouse it has just gotten exponentially worse. I’ve been in the RU worried about Propecia as my DHT was already really low. Losing any and all hope.

There are bald spots all over and almost no density. Forelock is down to a few hairs and I’m shedding mostly normal health hair. What’s left is a thin stringing mess. In November things felt like they were improving.

I think you are starting to have hairloss on top.

It looks diffuse. That's just my opinion, of course.
 

Georgie

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I feel like diffuse thinners don’t do particularly well on AA’s and 5AR’s. Idk, just from what I’ve seen anecdotally. I’ve never responded to anything. Actually, my DHT went UP after starting avodart. I have no idea what the f*** I should do anymore. I hope you have better luck than me. Darolutamide was my last hope and it’s doing nothing.
 

Calchas

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@DoctorHouse it has just gotten exponentially worse. I’ve been in the RU worried about Propecia as my DHT was already really low. Losing any and all hope.
What did your hair do to you and you put them on RU?
 

bluecyclone

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The shedding is pretty consistent. The hair that’s left is thin and beaten down. Was hoping I might see some slow down with the RU in a few months and decide if the Finasteride might help . I’m just concerned it’s a big risk that will cause a huge shed and no recovery. Outside of a few rare success stories all I see are people struggling. What’s the tipping point to try? I don’t know. Can RU help? I’m exhausted this has consumed my life and feels like a hopeless situation.

What should I expect if I try Propecia?
 

AnxiousAndy

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I feel like diffuse thinners don’t do particularly well on AA’s and 5AR’s. Idk, just from what I’ve seen anecdotally. I’ve never responded to anything. Actually, my DHT went UP after starting avodart. I have no idea what the f*** I should do anymore. I hope you have better luck than me. Darolutamide was my last hope and it’s doing nothing.
I'm exclusively a receder ( so far ) so I don't think that's what generally happens. Maybe we just have a balding gene immune to most treatments and it is usually first exprrssed through diffuse thinners? Total speculation but I couldn't pass up on replying to the "diffuse thinners are subhuman with AA's" comment :p
Either way @bluecyclone has amazing hair for his age and probably won't ever be completely bald. Lucky lucky.
 

Georgie

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I'm exclusively a receder ( so far ) so I don't think that's what generally happens. Maybe we just have a balding gene immune to most treatments and it is usually first exprrssed through diffuse thinners? Total speculation but I couldn't pass up on replying to the "diffuse thinners are subhuman with AA's" comment :p
Either way @bluecyclone has amazing hair for his age and probably won't ever be completely bald. Lucky lucky.
I am yet to see a full success story involving a diffuse thinner. Moreover, I’m yet to see success for anyone with DUPA or retrograde. I have a fucked blend of all. I’m screwed.
 

AnxiousAndy

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I am yet to see a full success story involving a diffuse thinner. Moreover, I’m yet to see success for anyone with DUPA or retrograde. I have a fucked blend of all. I’m screwed.
I got retrograde and I've not had success unfortunately so there may be some truth to that but ( you probably won't like this ) you got it a bit easier, you're a good looking girl and nobody unless they are assholes will bat an eye if you go buzzed or wear a wig.. You will STILL look good with little to no stigma. I'm sorry Georgie I'm drunk as f*** right now but that's the way it is.
 
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Georgie

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I got retrograde and I've not had success unfortunately so there may be some truth to that but ( you probably won't like this ) you got it a bit easier, you're a good looking girl and nobody unless they are assholes won't bat an eye if you go buzzed or wear a wig.. You will STILL look good with little to no stigma. I'm sorry Georgie I'm drunk as f*** right now but that's the way it is.
You’re right, I don’t like it. It doesn’t change the fact that in the space of three years I’ve gone from a huge amount of hair to 80% miniturisation. My hair doesn’t grow back. I lose hundred and hundreds of strands a day. I’ve tried spironolactone, cpa, the pill, duta, RU, darolutamide, topical minoxidil, oral minoxidil, stemoxydine, cetirizine, derma stamping, castor oil.. the list goes on and on. Nothing stops it. Nothing.
 

AnxiousAndy

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You’re right, I don’t like it. It doesn’t change the fact that in the space of three years I’ve gone from a huge amount of hair to 80% miniturisation. My hair doesn’t grow back. I lose hundred and hundreds of strands a day. I’ve tried spironolactone, cpa, the pill, duta, RU, darolutamide, topical minoxidil, oral minoxidil, stemoxydine, cetirizine, derma stamping, castor oil.. the list goes on and on. Nothing stops it. Nothing.
At least nothing yet, it doesn't make sense from a scientific perspective. You're not an anomaly, something is obviously causing this and apparently it isn't anything you've tried against. Can you show me pics of the top of your head wet if you have any? On here or PM would be fine.
 
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