So, I made an account just to contact you because our stories are extremely similar. I was on Accutane last year from April – October. Started to notice hair loss one day in May. One day out of nowhere I was rubbing my head over the sink and I covered it in hairs. Also, my eyebrows have thinned a bit. Since that day, it hasn’t let up, and now I’m diffuse thinning and very close to being able to see my entire scalp. Same as you, been to multiple doctors, had blood tests, etc., and everything comes back okay. I’ve just been told that it’s male pattern baldness, no one has even brought up Telogen Effluvium, even though that’s what I think it is based off the sudden change. Like you, now, my hair is “insanely fine, waspy, and straw like material.”
As of now, I’ve been on Finasteride 1.25mg and Minoxidil 5% for 2 months and some change. However, I was only putting Minoxdil on my temples and vertex until about 2 weeks ago cause I didn’t know what diffuse thinning was. Anyway, these past few weeks since doing that my hair has gotten extremely worse.
So, with that being said, I’m wondering since your original post, do you have any insight? What have you learned and what steps have you taken? Oh, and also, I started having ED from Accutane as well. Anything else you can tell me about that and if yours has improved? Thanks so much for sharing because I feel dead alone going through this.