losing myself

mariejoe

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Vanessa,

Be prepared for you new derm. On HairLossTalk.com's women's research pages, they have some info for what to tell your doctor:
Helping the Medical System


Unfortunately these days, it is all too common that physicians don't know enough about any given ailment to help much with it. A completely uneducated consumer who spends a half hour researching something on the web can often become more of an expert on it than their physician is. Women's hair loss is a prime example of this.

Consequently, we have contacted the top researchers and physicians in the country and compiled the information that well educated specialists in women's hair loss need in order to accurately diagnose Alopecia. Two things are needed: blood tests and clinical history.

Blood Tests: There are a series of tests that an educated specialist will have done on you. Without these tests, there is no way for any physician to accurately diagnose your condition. If your physician says these tests are not necessary, or refuses to do them for you, then it is advised that you find another physician to handle this situation. We cannot stress this strongly enough. You need to have these tests done, and you need a qualified specialist to review them, and your scalp, in order to get the care you need. The tests are as follows:

» Hormone levels (DHEAS, Testosterone, Androstenedione, Prolactin, Follicular Stimulating Hormone, and Leutinizing Hormone)
» Serum Iron, Serum Ferritin, TIBC (Total Iron Binding capacity)
» Thyroid Stimulating Hormone (TSH)
» VDRL
» Complete Blood Count (CBC)

Clinical History: Take a moment and write down the answers to the following questions, and have them prepared for your physician's review. Again, if he or she does not request the answers to these questions, nor seem interested in the paper you've brought in, find another specialist.

» Are you on any medications? If so, what.
» How long has this problem been occurring?
» Is the hair falling out fully intact, or is it breaking?
» Family history of diabetes, asthma, arthritis, lupus, vitiligo, anemia, or Addison's disease?
» Have you recently given birth, or gone through menopause?

Aslo, as far as Telogen Effluvium vs Androgenetic Alopecia: can you pinpoint something that would have caused you hair to shed: stress, new medicine, new diet, etc.?? Something 3-4 months ago... :freaked:

Good luck... :)
 

vanessa

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I am in the end stages of grad school, which can be stressful. But then again I have been functioning on stress since I started grad school five years ago and I never experienced this. I did switch to Ortho TriCycline Lite in December. I think that might have triggered it. I am back on my old one...but not sure if this new change has made things better or worse. If I dont stabalize by my fourth month on it I am getting off of them (though then I have to deal with the shed once you get off of them....is there no end to this insanity?)
 

SadMom

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Just wanted to give a quick update.... my computer has been down due to a virus (it's all better now!) for a LONG time, so I haven't been able to post. I did see the endo, who didn't offer much hope, but did run some necessary tests (for which I'm still waiting for the results almost 2 weeks later!!! Grrrrr).

The derm was GREAT. He seems quite knowledgable about women's hairloss and didn't even mention Rogaine in our first visit. He's waiting for the horomone level tests, he ordered a ferritin level also, and did a scalp biopsy. By sometime next week I should know what's going on.

He did say it could be a combination of things due to the unusual patttern of loss I'm having. My shedding for the past 10 days has slightly slowed for the first time in a couple of months. Not to normal, but down from 120+ a day to about 80-90. Not a big relief, but any slow down is good for right now.

I am also going to talk to my endo about taking Metformin, which is used for women with PCOS. Supposedly even if you don't have obvious blood work problems, this can help your ovaries calm down the overproduction of testosterone and therefore help the hairloss. I took this months ago, but found out my Dr then put me on a token dose to shut me up... not the standard dose, so maybe that's why I didn't see any improvments.

And, thank you for the post and reminder that I am more than my hair. I don't feel it some days. But I am trying to get into that place where I will do all I can to fix this,..... but if I can't I will have to move on won't I? It's terribly scary as you all can relate to.

Anyways, I'm back.
 

mariejoe

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vanessa said:
I....(though then I have to deal with the shed once you get off of them....is there no end to this insanity?)

You may not shed again when you quit. My gyn claims quitting my HRT will not cause a new shed.
However, I also think to shed or not to shed varies from pill to pill, and from person to person. :roll: (That wasn't much help, was it?
:roll: )

There will be an end to this insanity...something else is bound to come along and change your priorities. Hopefully something good. Life tends not to be static.
The less you stress your body, the sooner it will "even" out.
:rockon:
 

mariejoe

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SadMom said:
I did see the endo, who didn't offer much hope, but did run some necessary tests (for which I'm still waiting for the results almost 2 weeks later!!! Grrrrr).
Sound like he is related to the woman is saw. TWO WEEKS seems like a long time for results. Did they send them across country or something??

SadMom said:
The derm was GREAT. .... He did say it could be a combination of things due to the unusual patttern of loss I'm having.
Did he say what combinations of what?

SadMom said:
I am also going to talk to my endo about taking Metformin, which is used for women with PCOS. Supposedly even if you don't have obvious blood work problems, this can help your ovaries calm down the overproduction of testosterone and therefore help the hairloss. I took this months ago, but found out my Dr then put me on a token dose to shut me up... not the standard dose, so maybe that's why I didn't see any improvments.
Boy, wouldn't it be great if all you need is the correct dosage of Metformin.

SadMom said:
And, thank you for the post and reminder that I am more than my hair. I don't feel it some days. But I am trying to get into that place where I will do all I can to fix this,..... but if I can't I will have to move on won't I? It's terribly scary as you all can relate to.

We all have our dark days. But, time seems to help a lot.
As well as going out and pursuing answers. I think that can be very therapeutic, like you are somewhat in control of your hairloss. No matter the outcome!!! :rockon: :rockon:

Welcome back! :)
 

SadMom

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OK... after the computer being in the shop yet another week, I hope I'm really back. I got all my test results meantime. The horomone levels are *normal*, although my male hormones were in the higher end of normal. Plus, my scalp biopsy was positive for Androgenetic Alopecia. So, feeling TOTALLY hopeless now.

I know what my options are... but they are very limited, without great guarantees of any success.
 
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