Time To Share My Drug Free Cure For Aa :-) | HairLossTalk Forums

Time To Share My Drug Free Cure For Aa :-)

Discussion in 'Alopecia Areata' started by Miriam, Mar 25, 2017.

  1. Miriam

    Miriam New Member My Regimen

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    Hi everyone,
    I'm so happy to be sharing this with you... I'm 29 years old and had been suffering from Alopecia Areata on and off for over 10 years. I took minoxidil and oral steroids but the effects weren't long term. Last year I had some chronic pain problems amd accidentally found out the solution to healing AA..
    I learnt how to relax. It's very simple after all...but at the same time it takes some hard work. So here are some suggestions for you:

    1. Learn to practise mindfulness meditation. I'm serious it does wonders.
    2. Try to forget and ignore your bald patches... Don't 'feed' them... The more attention you give it the worse it will get. This also involves stopping ALL other treatments, even fussing about diet will make it worse.
    3. Start journalling about your problems.. Just write down honestly what is bothering you in life and do this on a frequent basis. It might start from AA itself but chances are you'll find other issues which are bothering you.

    Alopecia Areata is just one other way our bodies use to distract us from other underlying problems. When I realised this and started practicing mindfulness it all grew back.. Not only that but the dandruff and flakiness also disappeared, and my hairdresser remarked how healthy my hair looks :)

    So stop spending money, stop thinking about AA constantly and see if you can get more time to do the things you love and live a less stressful life, and be patient.

    Please let me know if this works for anyone else, it would mean a lot to me :)
     
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  2. rclark

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    That's good advice.

    At least your not trying to sell people bullshit and fake scams to regrow hair.
     
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  3. hairblues

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    Well for Areata stress can be a trigger for some...(unlike Androgenic)

    I would also tell people with Areata to look into an Autoimmune Paleo diet..they are mostly Paleo based elimination diets, you can find the groups on Facebook. It works well for MS in some and Rheumatoid Arthritis. etc. Not everyone but some.
    A lot of people with various autoimmune conditions including Areata reported good results..its not to replace medications but what it does is IF food or multiple foods are a trigger it helps to figure it out.
     
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  4. lorraine

    lorraine New Member My Regimen

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  5. lorraine

    lorraine New Member My Regimen

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    Hi:

    You answered my initial post over a week ago re rapid, severe hair loss at 65 after severe stress and taking high dose of np Thyroid. You suggested seeing Dr McKay Wiggins. I just saw Dr Lisa Bardone who works w her. Very caring, knowledgeable and glad I came. She listened to my whole story and said she was immediately doing a biopsy because she suspects this could be alopecia arrays w diffuse thinning. Although I had biopsy 3 years ago, she said results could change w different hair loss. She is hoping it is areata because she says she can treat it w xelganz and other Meds. If it is Telogen Effluvium, she says it's a wait game. Will call me in one week. Why did it take 6 months of lost time for any other doctor to recommend this simple step of another biopsy as you had recommended! I liked her. Am still going to LA endocrine Dr. Freidman on 5/23 for more info. Google Antonella Tosti w informative endo article on FPHL. Most comprehensive and insightful. Thought I would update you and thank you for urging me to seek more help. Lorraine
     
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  6. hairblues

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    I am so glad you are getting proper care!!
    I know it's hard to find the resources thankfully we are in a country and have access to major cities that at least we have less of a challenge than some.
    I hope whatever is causing it she can help you figure it out and treat it properly.
    I will look into the La Endocrine for future for sure.
    thank you!
     
  7. lorraine

    lorraine New Member My Regimen

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  8. lorraine

    lorraine New Member My Regimen

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  9. hairblues

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    thank you, I have read that study in the past I think several times if I am not mistaken.
    I have read a lot of studies over past year as I have been a little obsessed on the subject matter..I have seen a few endocrinologist.

    I saw a Dr Redmond who specializes in hair loss specifically and who has written books on subject. I saw him a few years ago but he wrongly diagnosed me, way over medicated me and I had a bad reaction to his meds...so just be cautious of Doctors.

    My hormones are all normal..I have hair loss on my Mothers side of family and I also have anemia which made it worse/more pronounced then it would have been.
    Right now my hair loss and re-growth is really good :) I am lucky that I am responding well so far.
    I use a topical blend of spironolactone and I also use 5% minoxidil and take a Doctor prescribed amount of Iron to keep my ferritin up over 60.

    I feel really fortunate but I am more concerned of what will or might happen in a few years when menopause will start because as estrogen falls I think my hair will worsen if I do not go on hormone replacement therapy at that time (we have many transgender people here and the improvement they see in hair when they take estrogen is at times remarkable).
    Right now all my hormone levels are normal and I am like clockwork with my period and no signs of changes yet but I am hyper aware of it.

    I am most likely going to go on hormone replacement at the time when estrogen starts to drop off (I am aware of risks) and I want to make sure I have a great endocrinologist lined up for that time period.
    So definitely keep me posted how this person turns out in LA.
     
  10. lorraine

    lorraine New Member My Regimen

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    Funny you said you saw Dr Geoffrey Redmond a while ago and he misdiagnosed you. I saw him about one month ago and he said my rapid and severe hair loss was due to menopause and prescribed finasteride which I am taking. He never suggested going for a scalp biopsy w this new onset. I am curious to see the results of the biopsy I had yesterday w Dr. Bardone and the next steps. What did he originally diagnose you with that was wrong? Thanks for information.
     
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  11. hairblues

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    He wrongly diagnosed me with PCOS he prescribed me high doses of metformin and spironolactone and birth control pill.

    What happened is the medication within a few weeks 'blocked' my period from coming down..I went to my gyno and he did a sonogram and the blood was inside my uterus. He immediately told me to stop the medication and said that Dr was wrong in his diagnoses and his medication choices..That blood sat in my uterus for 3 more months...I almost would have had to have a procedure to remove it because its very bad to have blood sitting stagnate in your uterus it can cause cancer if long term.
    When iI finally got my period it was one of the most painful experiences of my life that first afternoon. I was in tears and I am not a crier. It was on par with when i had my wisdom teeth out. Thank God it only lasted like 2 hours like that. I though my insides were ripping.

    I did more digging into Dr Redmond after that and I read a lot of negative stories about him..He is great IF you have PCOS but if you still have your period he just wrongly assumes you have this.

    two other things I disliked about him
    1. he told me not to bother using minoxodil--that it did not help any women and that it makes hair a mess.
    2. he MISSED my ferritin anemia from my blood work.

    I started minoxidil 6 months ago--it saved my hair and gave me really good regrowth and its not messing my hair I use foam.

    I took the same labs I did with Dr Redmond to the hair Doctor I saw last year--he said to me 'oh your ferritin anemic--how did this Dr miss that its on his labs!" and showed me the labs from Dr Redmond that my ferritin was 10..so my ferritin was really low for at least 3 years--which is around the time my hair loss became bad. It does not 'cause' hair loss--but if you are prone to hair loss it can make it worse or more apparent sooner.

    So I think women should be wary of him to be honest.
    I also read some scary things about him--I don't know what is true or not true about his 'practice' or why he is not working with insurance. I take stuff from internet with a grain of salt.
    he has some good knowledge but I think a lot more Doctors are up to speed now then few years ago.
     
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  12. lorraine

    lorraine New Member My Regimen

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    Thank you for input on Dr. Redmond. I had some reservations going to him but had no where else to turn. I found same info in Internet as you did about him. After going to two other endos before Redmond who don't address hair, that is why I decided to go to L- Doctor. He only functions as a medical consultant researcher and I will need to find an endo in NY who will be willing g to work w his diagnoses to continue ongoing treatment. Perhaps he knows of someone. I am also going to ask Dr Bardone who she recommends as endo who can work w him. I will have the biopsy result before I go to LA which is great. I am e hausted fro. All this research and going to docs. It is another job and I already am working two jobs. Will keep you posted on biopsy result. Thanks again
     
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  13. hairblues

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    No, it's exhausting. I feel like I can write a manuscript on it. The past 6 months I feel like I have been in grad school doing so much research on it..then the emotional and social impact of how you feel..it's a crazy experience. I am in a much better place than few months ago both emotionally and physically with regrowth but I honestly felt like I was in a really bad place for a while.
    I would love to say I was so emotionally strong to come through it on other side inner beauty and all that--but I am not going to lie I simply feel better because I have some regrowth. I am nervous for future if it gets bad again.

    Most Doctors don't know about hair loss. It's very difficult.
     
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  14. hairblues

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    @lorraine I want to add before I forget--If you think of it try to ask, what your Doctor thinks of PRP and Acell?
    If she has seen any convincing data or studies on it.
    If you don't remember, don't worry.. It may not even apply to you if it is areata.
     
  15. Ywg

    Ywg New Member My Regimen

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    Just go for your manuscript. It will help to many people. Another day another chance to make a good deed.
     
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  16. Armando Jose

    Armando Jose Senior Member My Regimen

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    +1, it is really very difficult ,..., but enigma moves the world and it is very exciting try to explain it

    BTW
    A widespread mistake is to go to the specialist's office with freshly washed hair. The hair and the scalp need to be observed after two or three days without washing the hair. I recognize that it can be annoying to go to the doctor with "dirty" hair but it is so.
     
  17. Eth36

    Eth36 New Member My Regimen

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    Thanks, I think I have alopecia areata on my beard, it's been like 2 years since I've been losing beard hair but it's a little bit different than alopecia areata because my beard falls out but not in patches.
     

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