Does anyone know statistics on Post Finasteride Syndrome?

[j3321]

I was looking up statistics online and I didn't come to anything conclusive but it appears that millions of men world-wide have used finasteride for hair loss, the majority of which having no serious long term problems.

But what about these P.F.S. people. Does anyone know how common they really are? Just curious if there were official statistics out.

 

[img23]

To everyone here, this needs to be addressed. The issue is out there, I am surprised I haven't seen more talk about it here. If this is just coming out, people need to know and talk about it. For it not to get attention on this forum is weird. Mods, people, thoughts? If it is true, it could lead into a world of sh*t, including class actions and such. Hopefully it is a fringe thing at best.

In the past, it's been a gamble about just sexual side effects, which were reversible if it was stopped. But if it comes down to rolling the dice for your health for the rest of your life, that's something else completely.

If Post-Finasteride Syndrome is real, needs to be addressed here. If it is not real, dispelled. I assume the mods don't know much at this point either, but the topic is out there. I'd like to hear more from hair loss talk about it. Again, address it if it's real, squash it if it is not.

 

[Chris87]

I dont doubt that it exists and I think there definitely needs to be studies done on it...which i have not heard about happening yet..i think some peoples systems just do not do well when you throw a curveball at them for whatever reason. I mean there are a lot of guys who have been on finasteride for close to 20 years and they say theyre absolutely fine. Other guys say they took it for a month and it fucked them up.

Millions of women take birth control (which affects their hormones)...most of them are fine, but....my girlfriend took birth control..and now has hormonal problems even years after quitting (her body doesnt want to produce enough progesterone now). There are articles and forums for women experiencing "permanent" side effects from birth control too.

So i think whenever you mess with hormone levels..you take the chance of f*****g things up...especially if you have a particularly sensitive system.

I've personally decided to take the risk after researching. I'm also very young and i've always been in great shape and i've never had any sort of imbalance or anything before (hell..i havent even had a cold in about 2 years). So far so good.

 

[nickypoos]

You guys are in luck, i've just happend to recieve the statistics on PFS (Post Finasteride Syndrome) which i requested a few months back. It seems though the results were surprising and highly correlative, lol jk, post finasteride syndrome doesnt exist.

 

[img23]

It's funny, the drug has been out for a very long time (before it was marketed as Propecia, as proscar), and haven't heard much about side effects other than sexual stuff. But more recently this new information has been coming up, if it's real then it could be liable. I haven't seen the mods chime in on this one, they might be keeping a distance from an issue I don't think people are fully understanding yet. Needs to be addressed either way...

 

[Ende]

Yeah, the drug has been out for a long time, but initially it was used by old men to reduce their prostates, so they could take a piss. I don't think they gave a sh*t about problems with their sexual function, which was probably long gone anyway. A 18 year old kid is something completely different.

PFS does exist. Many people who are suffering are members on propeciahelp.com. However, I believe the numbers are small, in relation to everyone who are - or have been using finasteride.

 

[img23]

It's funny, we really are not near any type of good treatments or cures. finasteride is the best thing going, but with all of the side effects, the rewards don't seem to be that great. Let's take a look;

Good:
Maybe stops hair loss for some people, or just slow it. No massive regrowth, or few stories of it.

Bad:
Sexual dysfunction, impotence, lowered sex drive. Post finasteride Syndrome. Hopefully no birth defects stuff, but always that thought lingering.

The field of dealing with male pattern baldness really hasn't moved forward in the last ten years, I remember checking in on the forums back then, and really nothing new has come in all that time. We simply don't have any really good options, unless you count lathering weird sh*t on your head twice a day, taken a pill that tweaks your system, or doing an invasive surgery. It's just not there yet. Sadly, true. The PFS thing is concerning, as it ups the ante for using finasteride. I guess you have to weigh out what's worth it. Too bad things haven't progressed further along with treatment/prevention.

 

[Mens Rea]

You guys are in luck, i've just happend to recieve the statistics on PFS (Post Finasteride Syndrome) which i requested a few months back. It seems though the results were surprising and highly correlative, lol jk, post finasteride syndrome doesnt exist.

How do you explain my clear semen, decreased libido and penile shrinkage? How about the testicle pain?

f*** you, you have no business posting sh*t you don't know jack about.

People on propeciahelp have had some fucked up bloods also to verify, not that anything needs verified, these problems are physical.

If anyone ever deserved a nice dose of PFS it may just be you.

 

[Mew]

I think there definitely needs to be studies done on it...which i have not heard about happening yet..

See attached for clinical study on persistent Finasteride sexual side effects being conducted by George Washington University professor and director of andrology, Dr. Michael Irwig.

post finasteride syndrome doesnt exist.

http://www.andrewrynne.com/blog/2010/10 ... -propecia/

http://blog.alanjacobsmd.com/alan-jacob ... n-men.html

http://blog.alanjacobsmd.com/alan-jacob ... erone.html

http://blog.alanjacobsmd.com/alan-jacob ... eride.html

http://blog.alanjacobsmd.com/alan-jacob ... uzzle.html

Hair Loss Medication can cause irreversible erectile dysfunction
http://translate.google.ca/translate?u= ... n&ie=UTF-8


Italy - Alarm for baldness drug
http://translate.google.ca/translate?hair loss ... f%26sa%3DN



[youtube:30n76qrb]http://www.youtube.com/watch?v=BEGCTMtlgoc[/youtube:30n76qrb]

[youtube:30n76qrb]http://www.youtube.com/watch?v=2nXWVTStnHs[/youtube:30n76qrb]

[youtube:30n76qrb]http://www.youtube.com/watch?v=QIDM2N1MuWw[/youtube:30n76qrb]



http://www.mhra.gov.uk/home/groups/par/ ... 054522.pdf

Under Undesirable Side Effects, pg. 7, section 4.8:
"Persistence of erectile dysfunction after discontinuation of treatment with PROPECIA has been reported in post-marketing use."

http://www.lakemedelsverket.se/SPC_PIL/ ... %20ENG.Doctor

Under "Special Warnings and Precautions for Use ", pg. 2, section 4.4:

"Long-term data on fertility in humans are lacking, and specific studies in subfertile men have not been conducted. The male patients who were planning to father a child were initially excluded from clinical trials. Although, animal studies did not show relevant negative effects on fertility, spontaneous reports of infertility and /or poor seminal quality were received post-marketing..."

Breast cancer has been reported in men taking finasteride 1 mg during the post-marketing period.

Under "Undesirable Side Effects", pg. 3, section 4.8:

- persistence of erectile dysfunction after discontinuation of treatment with PROPECIA
- male breast cancer "


[youtube:30n76qrb]http://www.youtube.com/watch?v=SZsgCQ2-ZS8[/youtube:30n76qrb]

 

[Tomeloos]

Can someone comment on Mew's post?
Is it accurate what he's saying?

If that is all true I need to consider quitting propecia i think.

 

[Mens Rea]

Can someone comment on Mew's post?
Is it accurate what he's saying?

If that is all true I need to consider quitting propecia i think.

Its true. I and Enden and many others can vouch for it.

If youre one of the lucky one's with no sides then maybe you're alright though. I thought i was ok too until a long while down the line.

 

[Ende]

It's true, but I don't think it's permanent. I think we're dealing with secondary hypogonadism and wasted penile muscles. If that's the case, it's reversible by drug treatment and kegel exercises. It's DHT deficiency and thereby elevated estrogen level which causes the side effects from finasteride. It begins with ball ache, then you get erectile dysfunction, and then it gets worse - and I do mean really bad.

 

[mpbsux20]

So can giving your penis regular exercise help prevent the muscles from getting wasted ?

 

[Ende]

No, you can't maintain the original muscle size if your testosterone level decreases too much.

 

[Prop]

So can giving your penis regular exercise help prevent the muscles from getting wasted ?

hoping enden is right about reversibility of wastage
i have a mild shrink in upper right corpus cavernosum.

sometimes looks the same, somethimes better

since now i'm taking no drug (only integ.)
but in these weeks i'm experiencing a sort of hormone rollercoaster

i mean that some days down there is always very hard without any stimulation.
and was little painful.
Hope is the way of right rebalancing

 

[Prop]

Enden is right it can be recovered.

i deeply hope.

however depends from damages
if fina causes progressive hypoactivity of corpora cavernosa, in worst case scenario there can be other possibilities


The hypoactive corpora cavernosa with degenerative erectile dysfunction: a new syndrome

A novel concept of the cause of erectile dysfunction was presented. Corpora cavernosa showed degenerative changes on histopathologic examination and exhibited diminished electromyography activity.
The condition is given the name 'hypoactive corpus cavernosum'. The cause of corpus cavernosum degenerative changes needs further study.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1523357/

 

[Ende]

Would you describe your experience here in more detail, monty? Your symptoms before using zinc, about zinc treatment, and how that Proviron pill affected your symptoms? It seems like your endocrine system is about to recover. How do you feel?

 

[Ende]

lol. Monty, that's f*****g great news, my man! Just be careful with Proviron. You don't want it to backfire. Obviously your system isn't quite balanced yet, but you're nearly there! As you already know, Proviron binds to SHBG. This frees up DHT and testosterone. It has strong androgenic effects like DHT, and it counters estrogen. Your body still needs a little more DHT to be balanced.

Proviron has a 12 hour half life. To avoid testosterone supression when you're almost recovered, I suggest you keep it to one pill a week, for a couple of weeks, and then see how you do without. You need to continue using for a while. Just enough to turn the DHT/estrogen ratio in favor of endogenous DHT.

We need to be sure that you don't fall back, before sharing everything with the guys on propeciahelp.com.

 

[Ende]

I'm sitting here shaking and laughing with tears in my eyes. It's a breakthrough, which I couldn't have done without you.

I suggest you don't exceed the RDA for zinc now. It's 15 mg a day. As for Proviron, I suggest one pill each week, for a couple of weeks, and then see how you do without. Small steps my friend. It's very important now.

 

[Ende]

ok but ive already taken another.

That's fine, but we don't want Proviron to supress your testosterone production. I suggest you wait one week untill you use another Proviron tab, but see how you feel. It should be used according to symptoms, but don't use anymore than 25 mg twice a week. You risk supression, even with a small dose like that.

50 mg zinc a day is supressive for your estrogen level. We don't want it to get too low. Dosing according to RDA is fine, but Proviron should be used to balance from now on.

Testosterone supression; your endogenous DHT production goes down. We don't want that.
Estrogen supression; cracking/aching joints, reduced libido/ED, muscle weakness and brain fog. Hell no.

Less is more.