Diagnosed with: Persistent telogen effluvium

Stokes

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Hi there,

I have been to the dermatologist and he has said i have "Persistent telogen effluvium". Which he said is kind of like when an animal is moulting. My hair has been falling out for about 1 and a half years now, and both my dermatoligist and my doctor don't know why its not growing back.

I am on propecia and I use Nizoral Shampoo. I've been on propecia for about 2months and I'm just starting Nizoral.

Has anyone else got this? Does anyone have any ideas about what to do?

If you want any more info just ask.

Thanks so much for reading my story.

See Ya Later

Sammi
 

Master Chief

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I too suffer from hairfallouts since one and a half year ago, but the doctor didn't diagnose it as male pattern baldness or persistent Telogen Effluvium, she wasn't sure exactly, but she said it was lack of vitamins and a inflammation on the scalp, I'm 18. How old are you? and are you losing hair over the whole head?
 

The Gardener

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To my knowledge, Propecia won't do jack to help with Telogen Effluvium. Telogen Effluvium is not caused by the DHT-related Male Pattern Baldness mechanism, so, taking a DHT inhibitor theoretically would not help.

I would get a second opinion, try to find a dermotologist that specializes in hairloss.
 

Stokes

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I'm 22, prob started losing it when i was 20. Im not losing it at the back of my head though. But pretty much all off the rest of my head is thinning.

Yeah the dermatologist said the propecia isn't doing anything. He does specialise in hairloss. He also gave me some steriods called: Dermol. Not too sure if thats doing anything. He said its a stab in the dark but may work.

Its really strange because I'm healthy otherwise.......I think :D
 

The Gardener

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ooohkay now...

Persistent Telogen Effluvium, huh. Well, the most obvious culprit would be some sort of either environmental or nutritional factor. To my knowledge, Telogen Effluvium is NOT genetic, so, I am assuming that you are eating normal foods and not making a diet out of chips. Have you made an assessment of your diet and surroundings? Is your diet balanced? Do you get outside? What is your stress level like? Do you subconsciously pull your own hair, out of habit? There has GOT to be a reason behind this. The truth is out there.

I suppose it could be some sort of inflammatory thang... have you thought about cycling in another anti-inflammatory shampoo, such as TGel perhaps?
 

Stokes

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Ok LOL

That is really funny because I started losing my hair as soon as I went flatting. My diet was sh*t. I didn't eat well at all. I'm starting to eat healthy again because I'm making a bit of money now.

My diet is going to change now to a balanced diet, and I shall see how that goes. I get outside heaps, stress is all good (i think). I dont pull my hair out unless I'm doing it while im asleep but i doubt it.

I really do hope I find the truth behind it. I'll look into TGel.
 

youngguy_uk

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how could he tell it was Telogen Effluvium? dont you have to do a blood test for that or something? wish my condition was down to Telogen Effluvium but reckon its male pattern baldness. i started losing hair a bit after i became a vegetarian, and more so when i went to uni and my diet was microwaveable. but as of about 8 or 9 months ago i dropped vegetarianism and started eating more healthily. and im losing more than ever :(
 

Stokes

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Being a vegaterian is healthy.

They live longer, have less disease's and are much slimmer.

He could tell it was Telogen Effluvium because he pulled out some of my hair (not hard) and looked at the root. The root was noticeably white. This means thats what all people get but the hair should just grow back.

Ok I don't really know what I'm talking about but I hope you get my point.
 

Stokes

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Well I go to University and study food and health. This is what my professor told the class, I doubt he would lie about that. He said results that have been taking from the US show....... He wasn't trying to turn us all into vegaterians, as vegaterians lack some important things too. He was just pointing out what came from the study.
 

Cassin

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Stokes said:
Well I go to University and study food and health. This is what my professor told the class, I doubt he would lie about that. He said results that have been taking from the US show....... He wasn't trying to turn us all into vegaterians, as vegaterians lack some important things too. He was just pointing out what came from the study.

A good healthy balanced diet and excersise is all you need. Veggie doesn't mean your slimmer or protected from more disease's. I worked at a healthfood store for a long time and have had "health" classes as well. Trust me, I have seen plenty of fat unhealthy Veggies. :roll:
 

HairlossTalk

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Stokes, ask your doctor exactly how he has been able to differentiate your hair loss from Male Pattern Baldness, and how he came to the conclusion it was "persistent Telogen Effluvium".

Telogen Effluvium by definition is not persistent. Its temporary. Sounds to me like yet another doctor talking out of his ( ) )

HairLossTalk.com
 

youngguy_uk

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have to agree with HairLossTalk.com...why not go find a trichologist/dermatologist/other specialist and get an informed 2nd opinion.

also, vegetarian diets can be very healthy but only if you make sure youre getting enough protein - a lot of vegetarian diets dont have enough. if youre veggie you should be fine as long as you eat plenty of beans/soya/other high protein food. ironically, not getting enough protein (though it has to be a serious defficiency) can lead to hairloss, and poor nail quality etc. this is because the body extracts extra needed protein from wherever it can, like the hair and nails.
 

youngguy_uk

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ive just been doing some reading randomly around the net and on the keratin.com website...i read in quite a lot of places that chronic Telogen Effluvium can take anywhere from 6 to 72 months to resolve itself, and can also occur only in the typical male pattern baldness areas. could this be right? is it possible that some of us younger guys who are losing fast simply have Telogen Effluvium? hmm. any blood tests or anything that can be done?
 

Master Chief

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youngguy_uk said:
ive just been doing some reading randomly around the net and on the keratin.com website...i read in quite a lot of places that chronic Telogen Effluvium can take anywhere from 6 to 72 months to resolve itself, and can also occur only in the typical male pattern baldness areas. could this be right? is it possible that some of us younger guys who are losing fast simply have Telogen Effluvium? hmm. any blood tests or anything that can be done?


I would like to know where you read that.
If the hairs are getting thinner in diameter then it is 99% male pattern baldness, but if you're just losing hair, then it could be due to various factors other than genetics
 

Stokes

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OK few questions to be answered:

He came to the conclusion that it wasn't male pattern baldness by a few reasons:

1) The hairs that he pulled from my head had a white bulb at the end of them. He said this is the normal process when hair falls out. He said your just losing more hair than your regrowing, thats why its thinning.

2) I don't have a receding hair line, but it's not falling out at the back of my head. It is noticable at the front middle, sides and crown.

3) He said that I shouldn't get male pattern baldness at my age (22).


I did go and see a specialist, he was a dermatologist. He seemed like he knew alot about hair.

Thats encouraging to know that cronic Telogen Effluvium can last between 6-72months. He did say that Telogen Effluvium usually lasts 5-6months, mine has been going on for about 20months. I got blood tests done they are all fine.

I dont really think my hairs are getting thinner, but this is hard to say.

I'm going to see the dermatologist again in a few months. Another $120 down the drain maybe :(
 

youngguy_uk

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i dont know mate that derm sounds a bit dodgy. male pattern baldness not possible at 22? sounds very dodgy...i know lots of people with male pattern baldness at that age and much younger.

one good point though..it seems like the hair on top of my head is not thinner, theres just less of them..maybe it could be Telogen Effluvium but i think its unlikely so il fight the male pattern baldness battle, not taking any chances whatsoever.

as for that website, il have a look around again in the next few days. until then (im on a v slow pc, sorry!) you should see it if you type in "telogen effluvium 72 months" in google.
 

Axon

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youngguy_uk said:
ive just been doing some reading randomly around the net and on the keratin.com website...i read in quite a lot of places that chronic Telogen Effluvium can take anywhere from 6 to 72 months to resolve itself, and can also occur only in the typical male pattern baldness areas. could this be right? is it possible that some of us younger guys who are losing fast simply have Telogen Effluvium? hmm. any blood tests or anything that can be done?

It'd be nice to believe this, huh?
 
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Axon said:
youngguy_uk said:
ive just been doing some reading randomly around the net and on the keratin.com website...i read in quite a lot of places that chronic Telogen Effluvium can take anywhere from 6 to 72 months to resolve itself, and can also occur only in the typical male pattern baldness areas. could this be right? is it possible that some of us younger guys who are losing fast simply have Telogen Effluvium? hmm. any blood tests or anything that can be done?

It'd be nice to believe this, huh?

Well as far as blood tests, if everything is normal, you probably have male pattern baldness. I think as far as having Telogen Effluvium, something would show up in blood tests.
 

Axon

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I mean it'd be nice to justify your hairloss - no one wants to admit they have male pattern baldness. I think everyone one of us, when we first realized we were losing hair, said "this can't be happening. Not to me."

<watches his point fly overhead>
 
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