OMG after 14 years it FINALLY STOPPED!! | HairLossTalk Forums

OMG after 14 years it FINALLY STOPPED!!

Discussion in 'Success Stories' started by elisabeth, Nov 1, 2013.

  1. elisabeth

    elisabeth New Member

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    Today is a day I have fantasized about for 14 years. I took a shower and my hair did not fall out. I AM SO HAPPY – it feels almost unreal. I am going to include a lot of details in this post because as I scoured the internet since 1999, I needed other people’s stories to provide as much info as possible so I could somehow figure out what the hell was wrong with me…so I apologize in advance for possibly boring you to sleep!


    I noticed around age 29 that my head of curls and waves was shedding…getting worse every year….i always had regrowth but it always shed so much that I went from all one length to what looked like lots of layers which ended up just being pieces everywhere & looked awful – it seemed to fall out at around 3 inches so I looked like one of those troll dolls…because I had curls I was able to hide it better than if I had straight hair…I got pregnant with baby #2 at age 30 & the shedding completely stopped around month 4 and I had tons of long thick gorgeous hair again…all fell out around 6 months post partum…got pregnant at age 36 & my hair was even more gorgeous than my last pregnancy….prayed to G-d that it would stay in but around month 5 post partum the shedding began….had our 4[SUP]th[/SUP] & final baby 8 months ago at age 42 and I couldn’t wait for my beautiful hair but it never happen this time, it shed throughout the entire pregnancy. For the last 10 years I have never worn my hair down, I always had cute little tiny clips in it so I could disguise the thinning…every single morning before I stood up I put a clip in it otherwise once I stood I would feel the hair hitting my arms and I just refused to begin my new day feeling that awful so in went the clip.


    Over the past 14 years I went to many different doctors (dermatologists ,internists & holistic), pleading with each of them to please find out what was wrong with me. They tested my thyroid, my hormones, my iron, anemia, my everything…all came up fine. No smoking gun. Some of these doctors put me on all kinds of treatments: ROGAINE, VITAMINS, NIOXIN, PROGESTERONE CREAM, TESTOSTERONE CREAM…on my own, out of sheer desperation I decided to try PROPECIA & about 7 years ago I ordered dog shedding pills; I told my best friend who then screamed that I was not a canine so I cancelled.
    I don’t want to think about all the money I spent on doctors visits, hormonal testing ($750) and all the medications because it has to be around $8,000. I don’t want to think about all the tears I shed because that would fill up an ocean. I am a very happy and otherwise blessed person…this was the one thing that was just killing me emotionally. My best friends felt awful for me & tried so hard to help me but nothing could console me; I just want my hair to stop falling out. I was determined to never give up, every day almost I googled “excessive hair shedding†& just re-read the same stuff over & over again for a really long time. But when I became pregnant this last time I became really disappointed..and even more determined. When I was 6 weeks post partum I went to an excellent and brilliant doctor who my best friend uses. He practices Oriental medicine & uses a different approach than other doctors; he doesn’t want to treat the problem but find out the cause, then fix that. He ordered a full blood work up like all the other doctors do but this time he added something no other doctor ever did and that was my ferritin levels & my iron saturation. My iron came back totally normal, as it always had BUT my iron saturation was 14% and my ferritin level was a 34. There it was, MY SMOKING GUN.


    I ran home & googled “low ferritin levels†and there it was; the most common reason for losing hair is a ferritin level below 70. Why the hell this never came up before when I searched I don’t know but whatever….nothing was going to get me down now because I found out what is wrong with me so now I can fix it. I did ask the Dr why I have low ferritin & he said it’s not important why or how, let’s just get my iron stores up. I eat red meat at least 3x a week so it was pretty shocking that my iron is low but for some reason my body wasn’t able to store it. I started on 325mg of FERROUS SULPHATE 2X A DAY…after 1 month my blood was tested & my ferritin level went to 41. Did I notice any hair improvement? A tiny bit – maybe instead of losing 1,000 hairs a day it went down to 950! Then I decided to search for a better way to raise my levels & thank the lord for the internet because I found out that the best iron with the greatest level of absorption is FERROUS FUMARATE…so I started myself on 325mg twice a day AND with each pill I take 500mg of L-Lysine & take it with a big glass of orange juice – if I have to take it with water then I add 500mg of vitamin C….then I waited, but not for long because within 2 weeks my dream came true. The shedding really slowed down….but I thought it was my imagination /maybe I was going insane because I was at my breaking point with my damn hair….i saw my best friend who said, “holy **** your hair looks so thick on top, I think its workingâ€! she asked me to take it down from the clip but I wouldn’t. Not yet. Another week passed and it wasn’t just a dream or wishful thinking but I could tell my curls were longer & when I showered it wasn’t ALL over my body. It’s been about 5 weeks since I began taking my ferrous fumarate cocktail and I am wearing my hair down. I can hardly believe it. I just took a shower and hardly anything came out. A lady at Target came up & asked me if I permed my hair or if my curls were all natural, and I had such pretty hair….TOTAL SHOCK!! I COULDN’T EVEN THANK HER BECAUSE I WAS SPEECHLESS. I haven’t had a compliment on my hair in about 14 years….14 LONG years!

    So this is my story with a very happy ending. All it took was a simple blood test followed by 4 weeks of supplements and the nightmare has ended. Every 30 days I will get my blood tested to make sure I don’t go into iron overload but my goal is to get my ferritin levels over 100 and keep them at about 120sih. If I had read a post like this 10 years ago I would have avoided a decade of hair despair. And if your ferritin levels are fine, keep searching for your smoking gun because it is out there;)
     
  2. rerun

    rerun Member

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    Amazing! I hope everything works out well.
     
  3. jay121

    jay121 Member

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    Sounds like you had chronic telogen effluvium
     
    TheHandsomeLurker likes this.
  4. thebin2

    thebin2 New Member

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    Thanks for this elisabeth!!
     
  5. melinda

    melinda New Member

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    Congratulations! I just had my blood work completed as well but they didn't test or at least it didn't show on the report what my iron saturation rate is.

    The ferritin level for me was 119 so I guess that means that low iron isn't the reason for me. One day hopefully I will figure out the secret to my thinning. I'm thrilled for you!!!!
     
  6. casperz

    casperz Experienced Member

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  7. rwhairlosstalk

    rwhairlosstalk Experienced Member

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    @Elisabeth, as a female who can readily, word for agonizing word, identify with your post, even if it's not me, I'm glad to hear of someone else experience just like you've said, what I've longed for. I am so happy that you chose to be specific also. So to be clear it was the iron saturation that was your smoking gun? Because if so I want to try the very same thing. So my questions are ( 1 ) The antidote was 325mg FERROUS FUMARATE with 500mg of L-lysine and vitamin C taken twice a day??? ( 2 ) What BRANDS of each of the ferrous fumerate and L-lysine were you taking? ( 3 ) Why were you taking L-lysine?
     
  8. hellouser

    hellouser Senior Member My Regimen

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    If only more of us were so lucky... unfortunately for many shedding will stop when theres no hair left.
     
  9. elisabeth

    elisabeth New Member

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    good morning! The smoking gun was my low ferritin level plus the iron saturation level. My ferritin was 31 & iron saturation was 14%. Ferritin must he at least a70 for hair not to just continously fall out so I researched what makes the ferritin levels rise the fastest and it was the specific instructions of taking the iron with those two supplements. Also you must avoid caffeine and calcium within two hours of taking them. Within two weeks of this my hair stopped falling everywhere. It's been about seven weeks now and when I showered last night I lost about 5 hairs total!! It's amazing. It used to take an hour for me to shower just to get all the hair off my body and not let it go down the drain so it wouldn't clog up. I did get my blood work last Thursday because it's possible to have iron overload but I bet my ferritin is at least 100 now. When I get my results I will post them.

    The brand of ferritin is: Ferretts, red and white bottle. Bought on Amazon for $14
    you can try any brand for vitamin C and L Lysine. I take all 3 same time twice a day.

    All I can say is this it all women: demand answers. I handed my doctor a list I got from some website that is a list of every possible blood test that should be done to determine cause of hair loss. I handed it to him and he laughed since some of the tests were for males and I said I don't care TEST ME FOR IT! And he did. The lab took 5 huge vials of blood I nearly passed out. And hidden within that blood was the cause of years of sadness. PERSERVERANCE PAYS OFF.
     
  10. rwhairlosstalk

    rwhairlosstalk Experienced Member

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    @Elisabeth I TRULY APPRECIATE YOUR COMING BACK AND POSTING WHAT HELPED YOUR HAIR TO STOP FALLING OUT. That is so very important to the rest of us. I hope it INSPIRES OTHERS TO RETURN AND POST WHAT HAS HELPED THEM. Elisabeth truly happy for you. Truly. I wish you years of lush thick and a truly bountiful head of curls. Oh question, were you just diffused thinning or a receding hairline and miniaturization and hair was different lengths and strand thickness?
     
  11. elisabeth

    elisabeth New Member

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    First of all I have heard that ferritin must be at least 70 for shedding to stop but that's not true...I just got my blood done and my results are:[FONT=Verdana, Arial, Tahoma, Calibri, Geneva, sans-serif]Ferritin 59. [/FONT]
    [FONT=Verdana, Arial, Tahoma, Calibri, Geneva, sans-serif]Iron 47[/FONT]
    [FONT=Verdana, Arial, Tahoma, Calibri, Geneva, sans-serif]Iron saturation only 15%[/FONT]
    [FONT=Verdana, Arial, Tahoma, Calibri, Geneva, sans-serif]
    [/FONT]
    [FONT=Verdana, Arial, Tahoma, Calibri, Geneva, sans-serif]Doctor says they are still low so I will stick with my cocktail twice daily. [/FONT]
    [FONT=Verdana, Arial, Tahoma, Calibri, Geneva, sans-serif]
    [/FONT]
    [FONT=Verdana, Arial, Tahoma, Calibri, Geneva, sans-serif]I'm guessing once I reached a ferritin level of 40 is when it really improved. And that was about two full weeks of the cocktail!

    My exact situation was : hair shedding from all over but it always grew back...receding a little bit...miniaturization yes. Always fell out at root. And always fell out. Always. If it wasn't up clipped back it would just be constantly falling. It hurt my heart every time I would take the clips out to see it just come out. It was a rough 12 years or so.

    The best gift for me would be to know if my story ever helped anyone find their smoking gun. Please share with me xo
    [/FONT]


    Happy Thanksgiving
     
  12. rerun

    rerun Member

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    Have you ever experienced a cessation of shedding for this long? So you are strongly under the belief that you have addressed the trigger?
     
  13. swingline747

    swingline747 Senior Member My Regimen

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    being anemic maybe Ill look into this as well.
     
  14. rwhairlosstalk

    rwhairlosstalk Experienced Member

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    OMG I STARTED TAKING VITAMIN D3 SOFTGELS (WALMART) ABOUT A WEEK AGO AND YESTERDAY MY DAILY HAIR LOSS OF ABOUT 100 A DAY (WITH SPIRONOLACTONE AND NIZORAL) PLUMETTED !!!! I read what you said and decided to revisit and continue vitamin D. MY GOD IS SURE HOPE THIS ISNT A FLUKE! MY ENTIRE LIFE HAS BEEN CONSUMED WITH THIS HAIR LOSS THING! SO much TIME, so much MONEY, so much FRUSTRATION!!!! Of course ANY ceasing of balding is attributed to JESUS! JESUS JESUS JESUS! No matter HOW it happened! THANK YOU JESUS!
     
  15. dehoha

    dehoha Member

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    Wait what...? Are you saying your hair loss became worse after you took vitamin D?
     
  16. bumblebeewang

    bumblebeewang Junior Member

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    This is interesting.
    I had my blood test done a couple of weeks ago and it says that my ferritin level is 39.
    I did not even know what it was until I read your thread.
    It seems like having a low iron level is one of the main causes of hair loss for women.
    I wonder if this applies to men's hair loss as well.
     
  17. resu

    resu Senior Member

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    Vitamin D raises T which possibly raises DHT.
     
  18. frontal

    frontal Member

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    Hi.

    Goodness me.

    But congratz.
     
  19. dehoha

    dehoha Member

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    Hi elisabeth, thank you for sharing your story. You said your iron saturation level was low. Did the product from Amazon solve both ferratin level and iron saturation level? If not, did you take a separate supplement for iron saturation level? Also, would regular iron supplement not suffice? I would appreciate your response. Thanks.
     
  20. kdonald

    kdonald New Member

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    Hello! I'm 21 years old and I am experiencing a lot of hair loss! I am desperate for it to stop! I started noticing more hair loss in May 2014, and it is still continuing. They took my blood and found my ferritin level to be 8!! A few weeks ago it rose to 32. What level will the shedding slow down? Also, I believe this is telogen effluvium due to low iron, and if so, how will telogen effluvium end...is it normal for it to end slowly? Some days I see hair loss about 90 others I see 200! Help!!!!!!!
     

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