I have been reading some clinicals on the internet regarding Frontal Fibrosing Alopecia (FFA) . Though there is not much information on it due to the fact that it is a rare form of Alopecia, I have found that Propecia has been somewhat of a successful treatment.
I am currently still on the Desonide Lotion ( a cortico steriod) prescribed by my derm about 5 wks ago for my first line of treatment, but if you look at my forth photo i just posted, you will notice a slight recession in the center of my hairline. I also notice advance thinning right past my hairline, when i look in the mirror. Therefore, this "lotion" is doing nothing to stop the FFA. I am still not experiencing any itching or redness, but I have been having tenderness on the crown area. It comes & goes.
My next appt. with derm is on May 5th. I want the Propecia. It is the only treatment that has shown positive results in some females, all other treatments have failed. According to findings cortico-steriods are a waste of time.
There is also one study in the JAAD (July 2009) where oral dutasteride was used in 13 female patients with FFA. At 12 months, six patients showed a complete arrest of the disease. In doing some research on dutasteride, i think that it may be a radical move to take it at this time, i think the Propecia would be a great start & possibly be all i need to halt this thing. I anticipate my derm will not want to prescribe it to me. If that is the case, I will find another derm that will. I do not have any risk of pregnancy so, i am a candidate for the drug. Though FFA is an autoimmune disease, the few clinical studies i came across found that there is a hormonal link in some females. I believe i may be one of them for several reasons. Wishful thinking, maybe, but while i still have enough hair, why should i not do everything i can to keep it.
I'll update on May 5th after my appt.