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  1. #1
    Senior Member
    Join Date
    Oct 2010
    Posts
    279

    My "side" story, dealing with fear

    6-7 yrs on propecia, little breaks in summer

    at last year i didn't notice anything (i mean there was less libido, less gland sensibility but hardly recognizable)

    in summer 2008, some months after stopping propecia, sides started and growth stronger and stronger
    one day i had a very bad pain for hours in my genital region.
    After that episod, pain disappeared but numbness and a strange "sparkling" sensation are still with me (now no more "sparkling")

    since 2008 i still have less strong erection, penis hypoesthesia, discomfort on lower belly.
    more time to get it up, and after eiaculation, more time to get it soft
    long time before eiaculate.


    ----------------------------------------------------------------------------

    UPDATE

    Dec 05, 2010
    the shrinkage seems recovering a bit but in strange way.
    the shrunk area start to fill like the top of "lego block".
    (i don't know if i make myself clear)
    in erection i can feel clearly this weird thing.


    january 2011 i had an improvement of my situation, but is unstable

    when one of my sides (prostate discomfort) was less strong, i noticed an overall improvement, specially in penile sensibility.
    It's very similar to this case on P.help
    http://www.propeciahelp.com/forum/viewt ... =30&t=1094

    2011

    experiencing cycle symptoms

    From 1 jan to 16 was "good" - 15G
    from 18 to 27 was "bad" - 10B
    from 27 jan to 1 march "good" - 32G
    from march 1 to march 11 "bad" - 10B
    from march 11 to may 10 "good" - 60G
    may 11G 5B 10G 5B
    june 6G 10B 7G 7B
    july 14G 17B
    aug 3B 28G
    sep 7G 15B 8G
    oct 5G
    TIMELINE
    15G 10B 32G 10B 60G 11G 5B 10G 5B 6G 10B 7G 7B 14G 20B 35G 15B 13G

    minor update
    april 2011
    i'm noticing less hair on my head
    (since i stopped finasteride, my baldness didn't get worse)

    minor up
    07 may
    noticing an improvement in penile girth
    less wrinkles on dorsal and more thickness
    discomfort on lower belly still present but seems less severe

    18 may
    i felt something like "unblocking sensation" on lower belly
    and i experienced more sensation/pleasure during an orgasm.
    this reinforce my opinion that prostate plays a central role in PFS.
    My theory is that lack of libido and lack of sensation are due for
    a sort of nerve compression on dorsal lateral portion of prostate


    august
    Fluctuations, but anhedonia, lack of libido still bother me
    penis girth seems improving


    ----------------------------------------------------
    ----------------------------------------------------
    BLOOD TEST

    glucose 95 (55-110) mg/dl
    creatinine 0,95 (0,70-1,20) mg/dl
    FSH 7,81 (1,60-11) mU/ml
    LH 9,87 (range 1,50-8,60) H mU/ml
    prolactine 12,3 (4,0-15,3)ng/ml
    17B estradiol 6 (range 7-45) L pg/ml
    Testosterone 5,06 (3,50-9) ng/ml
    test free 13 (5,6-40) pg/ml

    SPERMIOGRAM

    small amount of semen
    asthenospermya
    terathospermya

    TRANSRECTAL PROSTATE ECHO
    Size: Normal (in upper average limits)
    Few Little calcifications due to inflamatory process
    Beginning of central adenoma growt
    Overall: on the average

    TOTAL ABDMEN ECHO
    Nothing pathologic
    ---------------------------------------------------------
    ---------------------------------------------------------
    Useful tests not perfomed yet

    INVESTIGATING NERVE DAMAGES

    Sensory evoked potentials SEP
    Somatosensory Evoked Potentials SSEPs

    Somatosensory Evoked Potentials pudendal nerve(SEPPNs)
    sensory conduction velocity of the dorsal nerve of the penis (SCVDNP)
    pudendal nerve terminal motor latencies (PNTMLs)
    bulbocavernosus reflex latencies BCRLs

    magnetic resonance neurography (MRN)

    INVESTIGATING ARTHERIES DAMAGES
    important: evaluate Pudendal venous plex

    doppler of the cavernosal artery, and an ultra sound

    Magnetic Resonance Angiography (MRA)
    ----------------------------------------------------------------------

    Any guys recovered totally after persistent sides?
    my propecia sides
    1 low but acceptable libido\little numbness
    2 little prostate discomfort
    3 normal erections but still a bit of penis shrinkage
    My story:
    viewtopic.php?f=46&t=61784

    Post finasteride syndrome
    http://postfinasteridesyndrome.blogspot.com/

  2. #2
    Senior Member
    Join Date
    May 2010
    Posts
    2,200

    Re: My "side" story, dealing with fear

    Quote Originally Posted by Prop
    Any guys recovered totally after persistent sides?
    There are some cases at propeciahelp.com, but noone is able to use the information which is available, to reproduce anything. Have you done some blood work?

  3. #3
    Senior Member
    Join Date
    Oct 2010
    Posts
    279

    Re: My "side" story, dealing with fear

    Quote Originally Posted by Enden
    Quote Originally Posted by Prop
    Any guys recovered totally after persistent sides?
    Have you done some blood work?
    unfortunetly not.
    doctors treating the case like mere prostatitis, i'm from italy, there the medical community is still unaware of this problem.

    Also me at beginning i was skeptical about this syndrome because there is some kind of resistence to accept this uncommon situation.

    in the next doc appointment i will insist for the bloodwork

    you know exactly which kind of parameters i have to test?
    and by the way the possible remedies to take?

    i know everithing is uncertain
    my propecia sides
    1 low but acceptable libido\little numbness
    2 little prostate discomfort
    3 normal erections but still a bit of penis shrinkage
    My story:
    viewtopic.php?f=46&t=61784

    Post finasteride syndrome
    http://postfinasteridesyndrome.blogspot.com/

  4. #4
    Senior Member
    Join Date
    May 2010
    Posts
    2,200

    Re: My "side" story, dealing with fear

    Elevated estrogen level causes erectile dysfunction, and it's known to cause problems with the prostate too. How severe was your symptoms at the time you quit propecia? You should do a blood test as soon as possible. Check LH, FSH, testosterone, estrogen, prolactin and SHBG. Make sure you get a copy of the numbers and ranges. Depending on the result, there are several drugs available to deal with the problem.

    You could try 50 - 100 mg of zinc every day for a couple of weeks, and see if it gets better. It works as an aromatase inhibitor, and shifts the testosterone/estrogen ratio in favor of testosterone. Quit if your joints begin to crack. It indicates that the estrogen level is too low.

  5. #5
    Senior Member
    Join Date
    Oct 2010
    Posts
    279

    Re: My "side" story, dealing with fear

    How severe was your symptoms at the time you quit propecia?
    Absolutely light symptoms.
    little bit of low libido, and asthenia, that i haven't related to propecia
    i can tell u that now, thinking back, i had some period of brain fog

    syntoms became worst only months after stopping

    i quitted mainly for price\modest results of propecia

    You quitted cold turkey or gradually?
    my propecia sides
    1 low but acceptable libido\little numbness
    2 little prostate discomfort
    3 normal erections but still a bit of penis shrinkage
    My story:
    viewtopic.php?f=46&t=61784

    Post finasteride syndrome
    http://postfinasteridesyndrome.blogspot.com/

  6. #6
    Senior Member
    Join Date
    May 2010
    Posts
    2,200

    Re: My "side" story, dealing with fear

    I had so severe side effects after 4 months use, that I had to quit immediately. Went back on a low dose 6 months after that, when I realised that I wasn't going to recover by myself anyway.

  7. #7
    Senior Member
    Join Date
    Sep 2005
    Location
    Pennsylvania
    Posts
    312

    Re: My "side" story, dealing with fear

    What does "recover by myself anyway" mean?

  8. #8
    Senior Member
    Join Date
    May 2010
    Posts
    2,200

    Re: My "side" story, dealing with fear

    It means that finasteride is able to wreck your endocrine system so bad, that you need drug support to recover.

  9. #9
    Senior Member
    Join Date
    Oct 2010
    Posts
    279

    Re: My "side" story, dealing with fear

    Quote Originally Posted by Enden
    I had so severe side effects after 4 months use, that I had to quit immediately. Went back on a low dose 6 months after that, when I realised that I wasn't going to recover by myself anyway.
    my problem was that i hadn't any side noticeable for all period

    i choose to use propecia only because i read that sides always disappear after stopping.

    someone have to prepare a class action ...
    my propecia sides
    1 low but acceptable libido\little numbness
    2 little prostate discomfort
    3 normal erections but still a bit of penis shrinkage
    My story:
    viewtopic.php?f=46&t=61784

    Post finasteride syndrome
    http://postfinasteridesyndrome.blogspot.com/

  10. #10
    Senior Member
    Join Date
    Oct 2010
    Posts
    279

    Re: My "side" story, dealing with fear

    Quote Originally Posted by Enden
    Depending on the result, there are several drugs available to deal with the problem.
    but u mean that these drugs have to be taken for a period, right?

    i hope not for a lifetime
    my propecia sides
    1 low but acceptable libido\little numbness
    2 little prostate discomfort
    3 normal erections but still a bit of penis shrinkage
    My story:
    viewtopic.php?f=46&t=61784

    Post finasteride syndrome
    http://postfinasteridesyndrome.blogspot.com/

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