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  1. #1

    Being a Teen with no hair...

    I have alopecia and this is my story.

    i'm a teenager, soon to be senior, and i first started to lose my hair at the age of only 6 yrs old. I've had doctors tell my parents i was purposely pulling my hair out, which was definitely not the case. So i went into numerous treatments and went to numerous doctors to figure out what was going on and how this could be treated.

    Nothing ever work for me. I entered first grade with no hair what so ever and had to deal with all sorts of teasing, bullying, and torment. (And this bullying was mainly from kids in higher grades than I). I would come home crying everyday and have to tell my family about what had happened. I now think back on how hard it must have been for my mom, especially to see her only daughter cry everyday and not being able to do anything about it. She'd talked to the prinicipal about my bullies but the principal did nothing. So my family thought it best to try a different school that was a bit smaller. This school was much much better. My teacher told the kids in the class about me and what was happening and they stared a bit but finally got to know me and i finally felt accepted. there would be the odd remark from others about my hair but hey, it was better than the constant teasing i used to always get.
    And now i've just realized that i've rambled on sorry.
    So fast forwarding through, i made new friends who didnt care, but went to a new school because of some family reasons and had horrible teasing, but not as worse as when i was only in 1st grade. So i again moved to another school and i got stares but i made friends. i've had some ask if i had alopecia, but since it was still a sensitive topic i would just say "no', its definitely not their business. By this time i had been wearing a wig for 4-5 years.
    So i had no hair anywhere and what made me people stare was my no eyebrows or eyelashes. But through my years i've had hair regrow on my head...but then fall out again. But now i've had my eyebrows and eyelashes for maybe 2-3 yrs and im so proud of them, haha. In my years i've had people say "oooh, i just love your hair! its so gorgeous!!" and i smile and say thanks, which i think is hilarious since HA, its a wig :].

    My friends now are used to me, though i havent openly told them that i wear a wig, they've heard rumors but look past it and dont bring it up. But i do know that they probably have a feeling about it. Most days now its just a normal routine day and i dont think anything weird of it to have a wig. But i do break down a 1-3 times a year. I even have my doubts about whether any guy could like me if i wear a wig, because i mean come on its not exactly typical girlfriend material. However; I've learned to accept it and know that whatever happens, happens. And all i know is that life is hard, tough, and unpredictable........but no one makes it out alive, so do the best with what you have!

    It was hard to write this without crying a few times but it always makes me feel a bit better to remember all i've gone through.

    I'd love to hear your version of having to deal with alopecia, please post if you want!
    thanks for atleast reading this far! :]

  2. #2
    Senior Member BodyDysmorphic's Avatar
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    Re: Being a Teen with no hair...

    im sorry to hear about your alopecia

    welcome to HLT

    i think your very brave writing your story and expressing your feelings

    [quote]I even have my doubts about whether any guy could like me if i wear a wig, because i mean come on its not exactly typical girlfriend material./quote]

    to answer your question i know some men would get scared about you having alopecia. but some men, including myself, would probably look past that. it's not all about looks. i know that sounds cliche but if you a good person that has a "sunny disposition" and other good qualities men would be interested

    cheers

  3. #3
    Senior Member PersonGuy's Avatar
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    Re: Being a Teen with no hair...

    Welcome to HLT,

    I'm truly sorry to hear about all you've been through. I'm sure even your earliest memories include life being a constant battle. This is something no person let alone a child should have to go through. I can only hope that at some point in the very near future they come up with something that works for those with your condition. You deserve better. I'm sure the loyal friends you have now help to ease the pain your past may have caused you even though it never fully goes away.

    Until the day when science claps its hands and makes this all better, feel free to come here and vent to people who at the very least understand your situation better than the average person.

    Good luck and thanks for posting.
    If you don't like working nights think of it as working days in China.

  4. #4
    Junior Member megsomea's Avatar
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    Re: Being a Teen with no hair...

    I'm touched by your story and your spirit. I can relate to some of your experiences with hair loss as well. I lost my hair while in school and have worked to overcome some of the same self-defeating thoughts and questions that you have posed. In many ways, this is a daily battle.. some days good and some days bad. One thing I'd like to say is that you are brave and couragious! You've reached out to talk about this and I am just now starting to do so. You are motivating me and I'd like to talk more about this with you and anyone else on here. I think this support system could be really helpful to us.

    I'm now 25 and a wig wearer who gets those.. "who does your hair... it's gorgeous". Talk about a buzz kill when I have to think of some dumb answer like... my mom since people want the number to my beautician. I feel like giving them the link to wigs.com ha. Really though, people take for granted simple things like going swimming with boys, riding rides at theme parks or even wreastling and flirting.. Because of fear, I've resisted telling potential bf's about my problem.. my wig passes for real hair and most the time it doesn't "come up". Then I try to find the "right time" and the "right time" doesn't come... I've been "dethroned" by a few partners and then woops it's time to talk about it! The truth is... when this has happened, men haven't rejected me. If anything, people are bothered that I didn't trust them. I'm trying to start opening up more and trusting because our fears lay a lot inside us... That seems hard to believe huh? I don't even believe it sometimes but the proof has shown itself when time and time again (since i've been dating now for like 5 years) my hair (or lack there of) wasn't the problem... often my insecurity turned out being more the problem ha. I wish I knew the cure to fighting back the negative self talk... I can tell you this... it's not humor and it's not self-loathing either. I don't think we can make light of this problem or discount all of our other strengths because of a surface level problem. I'm glad there are brave people like you willing to talk about what this is like... it helps us remember that this isn't something that we are having to learn how to cope with alone!!! I'm here if you want to continue to share... I know I will keep sharing
    **Megan**

  5. #5

    Re: Being a Teen with no hair...

    i would also seek into the option of a wig if my hair falls completly out
    and in schools , you know how it is there, looks are everything there...
    REGIME:
    topical :
    - in the morning nanominox-ms
    - in the evening kirkland
    - a&g hairserum (started : 25-04-09) 1 box
    - hw topical 3
    - flutamide 2% 2x week
    Schampoo:
    - redken scalp relief
    - alpecin c1 cafeine
    Suplements:
    - dutasteride (avodart) 1x day (01-02-08)
    - xango (anti-oxydant)
    - hair&nails suplement
    - msm 1000mg/biotine/silicium
    devices:
    - every 2 days 25min laserhelmet 200 diodes (900mw)
    Situation:
    - 2725 FUT HT transplant istanbul (25-01-08)
    - 2509 FUE HT prohairclinic (07-04-10)
    - stable+regrow
    - 5xw fitness
    --------------
    - prp at prohair (05-08-2009)

  6. #6
    Junior Member megsomea's Avatar
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    Re: Being a Teen with no hair...

    I think it's interesting just how hard it is to place value on your other strengths when you feel so vulnerable about one particular thing... No one wants to be stared at and no one wants to feel different... If you can find the right wig you can look better than some people who have real hair lol I've actually met some people and thought, dang they should shave their head and get a wig! And another positive is that people are using extensions and fake hair pieces like crazy these days. It makes it feel "less different". There are a lot of ways to look at it other than, I suck cuz i'm bald ya know?
    **Megan**

  7. #7
    Senior Member
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    Re: Being a Teen with no hair...

    Great showing of character Unorthodox Teen.

  8. #8

    Re: Being a Teen with no hair...

    Thanks Megan and everyone else!
    It's very encouraging to hear from others about this.
    Reading all your comments really boosted my spirits!!
    Thanks :]

  9. #9
    Junior Member
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    Re: Being a Teen with no hair...

    when my son was in collage a team mate of his got cancer. His treatment left him bald. The whole team shaved their heads so he would not have to feel different. 10 years later I got au at age 53 I was a shave twice a day or have a beard person. My son calls me qtip my friends ask how they can catch it and do away with shaving. When the doc told me what I had and I looked at the web sites I thought why would I want to cure it. I live in Maine so I need a warmer hat in winter and had to go to a full face helmet snowmobiling. (no winter beard) I went from high hairline and full beard in April to hairless in Augest My wife of 30 years now says " you have a hair on your chin go shave" I have one of those hats that looks like a visor with hair and my wife keeps saying take that thing off when we go out to a public place. ( the hat keeps my head warm) Go bald and put 30.00 a month that you would spend in hair care in the bank. You will be laughing when you retire. Next watch the startreck movie I think it is voyage back or something with a boy friend and see him drool over the bald actress. Then show him you can look that good to. good luck.

  10. #10
    Senior Member
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    Re: Being a Teen with no hair...

    I can't imagine caring if a girl had a wig if I still found her physically attractive, and I find most girls with nice bodies attractive....I can't imagine ever wearing a wig myself though..the situation is pretty different for a guy I guess...

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